To design research which can truly improve the lives of patients and families, the CCCTG has recognized the need to engage and develop meaningful partnerships with those most affected by critical illness.
Meaningful engagement goes beyond participation in a research study; it means giving a voice to patients and families in how research is done and how research results are used.
Engagement includes elements of Information Sharing; Activation and Participation; Respect and Dignity; Collaboration; and Decision Making. (Source: Brown et al. Defining patient and family engagement in the intensive care unit. Am J Respir Crit Care Med. 2015 Feb 1;191(3):358-60.)